MASTER
 
 

Testing for Tots a Fabry Fundraiser

By Fabry Support & Information Group (other events)

Saturday, April 27 2019 6:00 PM 9:00 PM
 
ABOUT ABOUT

Testing for Tots is a fundraiser for an early diagnosis Research Grant for Fabry Support & Information Group. Our event hosted at City Scape Winery will provide a beautiful evening with live music by Trey Francis and delicious food by Seasons Cafe and Catering. Our silent auction items will be updated on this page but already include various restaurant gift cards, fun family experiences, date nights, and beautiful artwork. Click "interested" to get updates here as we get closer to the event! There is limited quantity of tickets, so to ensure your spot at the event, purchase your ticket at the link above early! Can't attend, but still want to support? Donation options are also on the website!

Fabry is a lysosomal genetic disorder that impacts the patient's heart, brain, and kidneys. A recent study showed 1 in 2,910 children born in a 6 month period had Fabry. Unfortunately, most states do not have Fabry included in newborn screening so those families aren't receiving treatment early on in life. With treatment, children and their impacted families can live a longer life with higher quality, less pain, and lower risk of life event.

Fabry Support & Information Group